My husband and I have been told that we are selfish and don't care enough about other people outside of our sphere. I've been passive-aggressively memed on Facebook for it.
However, I know my truth.
I know that we are dealing with the hardest thing a parent should ever have to deal with - the waiting game. Mackenzie's neurologist called us in for a follow-up with her - 3 months earlier than we had scheduled. She had reviewed her physical therapy notes and felt that she should be walking right now and wanted to see for herself what kind of progress she had made. The end result is more tests. MRI, audiology and genetic tests have been ordered. She wants to make sure there are no tumors on her spine, brain or in her abdomen. I don't think there is a single word that could elicit more fear in the heart of a parent: tumor.
Mackenzie continues to knock all of these tests out of the park - they have yet to find the definitive reason for her delays. She is smart - she listens to our commands and despite the fact she is not talking, she uses sign language to communicate - food/hungry, more, thank you, please... it is kind of crazy how the signing has exploded. Although slow to physically progress, she is indeed progressing. She crawls on all fours over the army crawl/rolling she had done previously, she pulls to stand on anything and everything and has started to regularly cruise along every piece of furniture in our house. She is kicking ass. I just know she will come out amazing on the other end of this.
I refuse to accept anyone in my life at this point that cannot even possibly comprehend the stress and worry that we are under. I will not apologize for putting my kids and their happiness first. That sometimes means making unpopular decisions. Our choices are selfish on purpose. Our choice is to surround ourselves with only the positive - if anyone is to stand in judgement of us and our choices then you don't deserve to be around us at all. I don't have room in my heart for ugly, mean behavior.
With that said, in the spirit of positivity, we refuse at this point to accept that... that... WORD (*whispers* tumor) in our vocabulary at this point. I can't even think about it or comprehend it. I don't want to. If the time comes and it is a reality, I will deal with it then.
But not now. Not today.
Today, my heart has no place for bitterness - only forgiveness. Today, every moment spent with my beautiful kids will be treasured. Today, I will surround myself with laughter and beauty.
Today, I know that miracles do and will continue to exist - I get the great honor of witnessing it every day in my children.
Nothing. Else. Matters.